Marie's Role
Ambassador
Organisation Type
Research Project
Marie Takes up New Role as ENDO1000 U.K. Ambassador.
ENDO1000 is a UK-wide research project that will collect data from 1000 individuals with known or suspected endometriosis. The resulting resource will allow research into the development of personalised care for people with endometriosis – transforming the lives of millions. Although U.K wide, the pioneering research will be led from the University of Edinburgh.
Their mission is to reduce diagnostic delay and develop personalised treatment approaches for individuals with endometriosis by studying data and biological samples collected from patients over an extended period. Supported by their overall objective to accelerate discovery and advance data-driven research into endometriosis diagnosis and treatment.
Marie, (who is a historical endometriosis sufferer) has recently funded a strategic report to support the great work being delivered by Professor Andrew Horne and the ENDO1000 project team and to assist fellow women who have or have yet to be diagnosed with the Endometriosis. Some of the statistics around the condition are stark:
- Endometriosis can end women’s careers
- Women who had surgery for endometriosis were 85% more likely to be unemployed 3 years post-diagnosis
- 63% of full-time working women surveyed who had endometriosis surgery fell to 44%
- 89% of women with endometriosis surveyed noted a loss in productivity at work
- Up to one third of women with endometriosis suffer from infertility
Some asset designs from the proposed campaign
In April 2024, Marie was Keynote speaker at the ‘Woman in Scotland Lunch’ where she shared her story and how endometriosis impacted her journey both personally and professionally. The prestigious event raised thousands of pounds for endometriosis U.K. You can read Marie’s speech here.
Professor Andrew Horne FRSE, Director of Centre for Reproductive Health, University of Edinburgh who is leading ENDO1000 commented on Marie’s support…
“Marie Macklin’s unwavering dedication as an ambassador and supporter of women with endometriosis is a beacon of hope and empowerment. Her support extends beyond advocacy to actively fuelling our research efforts into understanding and combating endometriosis. I strongly believe that her commitment will move us closer to breakthroughs, offering hope for a future where those affected by this condition can live with dignity and without limitations.”
Find out more about ENDO1000: www.endo1000.com
January 2026 | Project Update | Research Recruitment Launch
“As the founding Ambassador of #TALKEndo, ENDO1000, I’m incredibly proud to see the pioneering endometriosis research project at the University of Edinburgh reaching this important milestone. Endometriosis is a debilitating condition affecting one in ten women, and I’m excited that the team will soon be opening recruitment for this groundbreaking study.
Since launching the #TALKEndo, ENDO1000 campaign in October 2024, our goal has been to raise vital awareness and champion a £1 million fundraising initiative to support the research project. I want to thank everyone who has helped bring us to this point. While this is a hugely positive step forward, there is still much work to do – from continuing to raise awareness of the condition to working with local and national governments to drive meaningful change for woman in the U.K and across the world.
To learn more about the research and how you can take part, please visit www.endo1000.com”
Dr Marie Macklin CBE | #TALKEndo, ENDO1000 Founding Ambassador
September 2024 | Project Update:
The summer season welcomed significant progress with the ENDO1000, #TALKEndo women’s health care campaign. Marie, as the first ENDO1000 Ambassador took the #TALKEndo conversation and campaign to the Scottish Government, meeting with Deputy First Minister and Cabinet Secretary for Economy & Gaelic, Kate Forbes MSP.
The productive conversation provided the platform to discuss the ENDO1000 research project on endometriosis that is being led in Scotland by Professor Andrew Horne of Edinburgh University.
U.K. media has also picked up on the endometriosis conversation and women’s health care campaign activity with the Observer, (press) and LBC, (radio) engaging with Marie to provide the opportunity to share her story and reasons behind supporting the research.
Click for the Observer article
Click for the LBC conversation with Matthew Wright
Marie’s special project’s team continue to work with Andrew and the wider ENDO1000 group at the university to push forward with the campaign activities. In the coming weeks…
- The new look ENDO1000 website will launch
- AN ‘ENDO1000 campaign video’ that shares more on the pioneering project will go live, presented by Professor Andrew Horne
- The first 10 ambassadors will be introduced who will share their stories and impact of endometriosis on their personal and professional lives
- The #TALKEndo Launch event will take place in Edinburgh this October – providing the platform to share more on the research and campaign – building awareness and sharing more on the funding required to support each stage of the research
For more on ENDO1000, visit the website – www.endo1000.com
October 2024 | Project Update:
See below for our ‘#TALKEndo | ENDO1000′ campaign video that shares more on the pioneering project and women’s health campaign, commissioned by Marie and presented by Professor Andrew Horne, co-director at ENDO1000.
October 2024 | Project Update Continued:
Marie launches campaign to raise £1million for endometriosis project. Read full statement.
October 2024 | Project Update Continued | #TALKEndo ENDO1000 LAUNCH
On Monday 28th October 2024, Marie’s funded women’s health campaign, #TALKEndo launched in Edinburgh. The significant event provided the opportunity for ambassadors, team members and invited guests the opportunity to hear from our guests speakers and enjoy a tour of the laboratories and ENDO1000 HUB where the project team are based. At the event, Marie shared her ask on raising £1million to support the pioneering endometriosis project. Read full statement.
The event was gratefully received and provided the opportunity to maximise media and PR activity around the campaign and project. See below three videos that provide highlights from the launch event, Channel 5 News feature and extract from the BBC Radio Scotland, DRIVETIME programme. STV also picked up the story, featuring on their evening bulletin – link below.
